The Growing Trend of Patient-Led Clinical Research in Rare Disease
Conversations in Drug Development Trends
OCTOBER 29, 2024
The FDA, for example, has supported internally and externally led meetings and regularly hosts and attends meetings that include rare patient organizations as key attendees and/or co-presenters. For example, Voice of the Patient and Patient-Focused Drug Development meetings are focused on one disease or a group of similar diseases.
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